Data Sharing In Healthcare Research

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The Benefits of Data Sharing - Sharing Clinical Research Data - …

(3 days ago) People also askWhy is data sharing important in health and medical research?A systematic review The foundation of health and medical research is data. Data sharing facilitates the progress of research and strengthens science. Data sharing in research is widely discussed in the literature; however, there are seemingly no evidence-based incentives that promote data sharing.Reference: researchintegrityjournal.biomedcentral.com/articles/10.1186/s41073-01…Why is sharing data important?Sharing data allows us to have the fullest possible understanding of health challenges, to develop new solutions, and to make decisions using the best available evidence. The Research for Health department has helped spearhead the launch of a new policy from the Science Division which covers all research undertaken by or with support from WHO.New WHO policy requires sharing of all research datawho.intHow can health data be shared?Various initiatives have successfully applied solutions for sharing of health data, such as the International Household Survey Network, the Demographic and Health Survey (DHS), the Multi-Indicator Cluster Surveys (MICS), and the International Network for the Continuous Demographic Evaluation of Populations and Their Health (INDEPTH) [ 2, 81, 82 ].A systematic review of barriers to data sharing in public healthbmcpublichealth.biomedcentral.comWhat are the challenges of sharing health data?Nevertheless, sharing health data can be cumbersome and requires a team effort that combines expert knowledge of different disciplines, including ethics, privacy, healthcare, data infrastructure, and data science. One of the biggest challenges of sharing health data are the privacy concerns regarding the sensitivity of the data in question.A guide to sharing open healthcare data under the General Data - …nature.comFeedbackNational Center for Biotechnology Informationhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7246891Sharing Is Caring—Data Sharing Initiatives in Healthcare - PMCWEBAnother development in data sharing is the Personalized Consent Flow : a new consent model that allows people to control their personally collected health data and determine to what extent they want to share these for research purposes. Three main …

https://www.ncbi.nlm.nih.gov/books/NBK137823/#:~:text=Data%20sharing%20can%20enhance%20understanding%20of%20the%20results,discoveries%20beyond%20those%20derivable%20from%20any%20single%20study.

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Data Sharing and the Growth of Medical Knowledge

(7 days ago) WEBIn 2003, the US National Institutes of Health (NIH) issued a statement that encouraged data sharing in general and required investigators submitting applications for grants of $500 …

https://jamanetwork.com/journals/jama/fullarticle/2799369

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A guide to sharing open healthcare data under the General Data

(Just Now) WEBHealthcare data are increasingly essential for improving patient care, particularly in the Intensive Care Unit (ICU) 1,2,3.In addition, the COVID-19 pandemic …

https://www.nature.com/articles/s41597-023-02256-2

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Remove obstacles to sharing health data with researchers - Nature

(Just Now) WEBCOVID-19 has shown that international collaborations and global data sharing are essential for health research, but legal obstacles are preventing data …

https://www.nature.com/articles/s41591-021-01460-0

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New WHO policy requires sharing of all research data

(3 days ago) WEBScience and public health can benefit tremendously from sharing and reuse of health data. Sharing data allows us to have the fullest possible understanding …

https://www.who.int/news/item/16-09-2022-new-who-policy-requires-sharing-of-all-research-data

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Developing a strategy to improve data sharing in health research: …

(7 days ago) WEBThe primary barriers to data sharing included perceived negative consequences and lack of competency to share data. The primary facilitators to data …

https://journals.sagepub.com/doi/10.1177/1833358320917207

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Sharing Is Caring—Data Sharing Initiatives in …

(Just Now) WEBThe Personal Health Train (PHT) [45,46] is another example of a federated data system; it aims to connect distributed health data and create value by increasing the use of existing health data for citizens, …

https://www.mdpi.com/1660-4601/17/9/3046

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Data sharing: keeping patients on board - The Lancet Digital Health

(3 days ago) WEBData sharing: keeping patients on board. When Health Data Research UK recently announced the imminent launch of a new initiative, it titled the press release “Pioneering …

https://www.thelancet.com/journals/landig/article/PIIS2589-7500(19)30163-3/fulltext

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Privacy-preserving data sharing infrastructures for medical …

(2 days ago) WEBIntroduction. Data sharing is the practice of making data from research and healthcare available for secondary purposes and to third parties. This enables data …

https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/s12911-021-01602-x

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Developing Data Sharing Models for Health Research with Real

(Just Now) WEBCritical to the success of data sharing is to design secured data sharing platforms around patient preferences and expectations. The objective of this review was …

https://link.springer.com/article/10.1007/s10916-022-01875-3

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Ready, set, share: Researchers brace for new data-sharing rules

(6 days ago) WEBResearch presented at the September 2022 peer-review congress found only about half of the 110 largest public, corporate, and philanthropic funders of health …

https://www.science.org/content/article/ready-set-share-researchers-brace-new-data-sharing-rules

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Data sharing in healthcare: ethical considerations for a remote era …

(1 days ago) WEBResearch organizations can participate in ethical data sharing today by considering participants’ privacy and security and balancing the need to protect their …

https://medcitynews.com/2021/07/data-sharing-in-healthcare-ethical-considerations-for-a-remote-era-of-research/

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What incentives increase data sharing in health and medical …

(5 days ago) WEBResearch waste: hidden data, irreproducible research. The foundation of health and medical research is data—its generation, analysis, re-analysis, verification, …

https://researchintegrityjournal.biomedcentral.com/articles/10.1186/s41073-017-0028-9

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Responsible data sharing in international health research: a …

(3 days ago) WEBRecently, a number of multi-stakeholder initiatives have been funded to develop data-driven translational research platforms to improve patient outcomes and …

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-019-0359-9

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Tackling Public-Health Research’s Data-Sharing Problem

(1 days ago) WEBBooth’s Center for Applied Artificial Intelligence (CAAI) set to the task of figuring out how to improve public-health data sharing. In July 2020, the CAAI launched the Computational …

https://www.chicagobooth.edu/why-booth/stories/public-health-data-sharing-problem

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A systematic review of barriers to data sharing in public health

(6 days ago) WEBWe conducted a systematic review according to PRISMA guidelines [] to identify documents that reported on barriers to data sharing in public health [see …

https://bmcpublichealth.biomedcentral.com/articles/10.1186/1471-2458-14-1144

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Building the Data Capacity for Patient-Centered Outcomes …

(7 days ago) WEBThe 2023 Office of the Secretary Patient-Centered Outcomes Research Trust Fund (OS-PCORTF) Annual Report highlights the accomplishments of 36 multi-agency …

https://aspe.hhs.gov/reports/os-pcortf-2023-annual-report

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Mayo Clinic biostatisticians power every step of medical research

(2 days ago) WEBBiostatistics staff support every step of a research study, starting with the research question. They advise on protocols and study designs. They build, curate, …

https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-biostatisticians-power-every-step-of-medical-research/

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The U.S. wants to change how researchers get access to a huge

(2 days ago) WEBHealth researchers are urging the U.S. government to rethink a plan that would require them to use an in-house government system, and pay substantially more, …

https://www.science.org/content/article/u-s-wants-change-how-researchers-get-access-huge-trove-health-data-many-don-t-idea

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A secured cloud‐medical data sharing with A‐BRSA and Salp ‐Ant …

(6 days ago) WEBThe future scope of this work presents several opportunities for further research and development in the field of secure medical data sharing in cloud-based s …

https://ietresearch.onlinelibrary.wiley.com/doi/10.1049/cit2.12305

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AcademyHealth Presents a Literature Review Summarizing the …

(8 days ago) WEBShare. As a component of an ongoing research project to address the gaps in medical care that contribute to delayed or missed diagnosis of serious disease and …

https://academyhealth.org/blog/2024-05/academyhealth-presents-literature-review-summarizing-research-findings-use-internet-search-data-diagnosis-diseases-and-conditions

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New research hub at the U of M would provide data to guide …

(7 days ago) WEBListen New research hub at the U of M would provide data to guide public health emergencies A student wears a mask and face shield in a 4th grade class amid …

https://www.mprnews.org/story/2024/05/20/university-of-minnesota-research-hub-for-public-health-emergencies

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The Benefits of AI in Healthcare IBM

(7 days ago) WEBOne benefit the use of AI brings to health systems is making gathering and sharing information easier. AI can help providers keep track of patient data more …

https://www.ibm.com/think/insights/ai-healthcare-benefits

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Mortality in Patients Hospitalized for COVID-19 vs Influenza in Fall

(7 days ago) WEBBased on US Department of Veterans Affairs electronic health records from all 50 states, we identified people who were admitted to the hospital with a diagnosis of …

https://jamanetwork.com/journals/jama/fullarticle/2818660

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Fast Facts: Health and Economic Costs of Chronic Conditions

(2 days ago) WEBMore than 934,500 Americans die of heart disease or stroke every year—that's more than 1 in 4 deaths. 3 These diseases take an economic toll, as well, …

https://www.cdc.gov/chronic-disease/data-research/facts-stats/index.html

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WHO’s Investigations and Studies (Unity Studies): a standardized

(5 days ago) WEBWHO’s Investigations and Studies (Unity Studies) provides the systems, tools and connections to carry out enhanced surveillance and targeted investigations and …

https://www.who.int/news/item/16-05-2024-who-s-investigations-and-studies-a-standardized-preparedness-framework-for-an-effective-and-proportionate-response

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Research Data Analyst 3 - 129913

(1 days ago) WEBThis position also involves academic writing and editing (e.g., data documentation, grant proposals, and portions of journal articles), preparing information …

https://employment.ucsd.edu/research-data-analyst-3-129913/job/28120205

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Lyme Disease Surveillance and Data Lyme Disease CDC

(1 days ago) WEBOver 63,000 cases of Lyme disease were reported to CDC by state health departments and the District of Columbia in 2022. This number reflects cases reported …

https://www.cdc.gov/lyme/data-research/facts-stats/index.html

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Fast Facts: Firearm Injury and Death Firearm Injury and Death

(3 days ago) WEBQuick stats. In 2022, there were more than 48,000 firearm-related deaths in the United States according to provisional mortality data. That's about 132 people dying …

https://www.cdc.gov/firearm-violence/data-research/facts-stats/index.html

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KFF Health Tracking Poll May 2024: The Public’s Use and Views of …

(1 days ago) WEBOverall, 12% of adults say they have ever used GLP-1 drugs, including 6% who say they are currently using them. The share who report ever taking these drugs …

https://www.kff.org/health-costs/poll-finding/kff-health-tracking-poll-may-2024-the-publics-use-and-views-of-glp-1-drugs/

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Madison Marsh: Miss America, Air Force Officer, and Cancer

(1 days ago) WEBImage Provided by PanCan. Miss America, Madison Marsh shares her passion for working in cancer research. Marsh was just 17 years old when she lost her …

https://www.healthline.com/health-news/miss-america-madison-marsh-cancer-research

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Basic Research Powers the First Medication for Postpartum …

(6 days ago) WEBLearn about NIMH priority areas for research and funding that have the potential to improve mental health care over the short, medium, and long term. …

https://www.nimh.nih.gov/news/science-news/2024/basic-research-powers-the-first-medication-for-postpartum-depression

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