Trust Based Governance Of Health Data
Listing Websites about Trust Based Governance Of Health Data
Towards trust-based governance of health data research
(Just Now) Data governance refers to the making of arrangements for responsible collection, storage, usage and sharing of personal data and is needed to account for ethical concerns arising from the use of health-related data, especially when collaborating in large-scale research projects (Budin-Ljøsne et al. 2014 ). See more
https://link.springer.com/article/10.1007/s11019-022-10134-8
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Towards trust-based governance of health data …
(8 days ago) WEBData governance refers to the making of arrange-ments for responsible collection, storage, usage and sharing of personal data and is needed to account for ethical con-cerns …
https://link.springer.com/content/pdf/10.1007/s11019-022-10134-8.pdf
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Data-driven research and healthcare: public trust, data …
(4 days ago) WEBIt is widely acknowledged that trust plays an important role for the acceptability of data sharing practices in research and healthcare, and for the adoption …
https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-023-00922-z
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What can data trusts for health research learn from …
(3 days ago) WEBAbstract. New models of data governance for health data are a focus of growing interest in an era of challenge to the social licence. In this article, we reflect on …
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9046739/
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Towards trust-based governance of health data research
(4 days ago) WEBTowards trust-based governance of health data research. It is argued that the concept of trust provides an escape from the privacy-solidarity debate and three …
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Towards trust-based governance of health data research
(5 days ago) WEBa new theoretical framewor k for data governance which is. grounded in trust. The structure of the paper is as follows. First, w e sketch. the current status of the …
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Towards trust-based governance of health data …
(9 days ago) WEBTowards trust-based governance of health data research Marieke A. R. Bak 1 · M. Corrette Ploem 1 · Hanno L. Tan 2,3 · M. T. Blom 2 · Dick L. Willems 1 Accepted: 12 …
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Towards trust-based governance of health data research
(5 days ago) WEBLastly, the paper details three aspects of trust that can help to create a responsible research environment and to mitigate the encountered challenges: trust as multi-agent …
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Towards trust-based governance of health data research
(5 days ago) WEBNamely, strictly formalised data protection requirements may cause routinisation among researchers instead of substantive ethical reflection, and may crowd out trust between …
https://philpapers.org/rec/BAKTTG-3
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Strengthening health data governance: new equity and rights …
(9 days ago) WEBIntroduction. Digitalised, data-driven healthcare is increasingly becoming the norm or aspiration for governments around the world ().Vast amounts of health data and data …
https://www.emerald.com/insight/content/doi/10.1108/IJHG-11-2022-0104/full/html
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Public engagement with health data governance: the role of …
(Just Now) WEBThis holistic approach fosters trust and transparency by including citizens in the development, evaluation, implementation and monitoring of data initiatives (i.e., …
https://www.nature.com/articles/s41599-021-00826-6
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Can we trust trust-based data governance models?
(3 days ago) WEBThe data trust (B) therefore bridges the trust gap between A and C. In contrast to the two other trust-based regulation models, the data trust does not suffer—or at least to a …
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Healthcare Data Governance - AHIMA
(8 days ago) WEBIf the entire organization is engaged, a data governance culture is formed, leading to the organization's robust program. A healthcare data governance culture may be achieved …
https://www.ahima.org/media/pmcb0fr5/healthcare-data-governance-practice-brief-final.pdf
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Evidence-based guiding principles to build public trust in personal
(3 days ago) WEBThe information provided should also elicit a feeling of familiarity, as familiarity with health system actors fosters trust. 77 Similar is true for trust in health …
https://journals.sagepub.com/doi/full/10.1177/20552076221111947
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Towards trust-based governance of health data research - PMC
(3 days ago) WEBA proposal for trust-based governance of health data research. We have seen that the aims of the GDPR were not reflected in researchers’ experiences. The current data …
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9835739/
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Health Data Governance Summit Pre-read: Data Governance …
(Just Now) WEBoverarching context for health data governance. However, several of these principles reinforce a Western/Global North concept of individual rights, which may not …
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Can we trust trust-based data governance models?
(9 days ago) WEBwith trust-based approaches. Especially one model, that of data trusts, may have far-reaching consequences. Policy Significance Statement In an increasingly data-driven …
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Towards Principles-Based Approaches to Governance of Health …
(1 days ago) WEBAbstract. Technological advances in the quality, availability and linkage potential of health data for research make the need to develop robust and effective …
https://pubmed.ncbi.nlm.nih.gov/24416087/
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Home: Health Data Governance Principles
(3 days ago) WEBThe Health Data Governance Principles bring a human rights and equity lens to the use of data within and across health systems. They are oriented towards supporting …
https://healthdataprinciples.org/
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Trustworthy governance for sharing health-related data
(7 days ago) WEBFrom 2019 to 2021, we undertook mixed methods research to examine trustworthy governance models of sharing health-related data. This research was conducted over …
https://medicine.nus.edu.sg/cbme/research/trustworthy-governance-for-sharing-health-related-data/
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What can data trusts for health research learn from participatory
(6 days ago) WEBNew models of data governance for health data are a focus of growing interest in an era of challenge to the social licence. In this article, we reflect on what the data trust model, …
https://jme.bmj.com/content/48/5/323
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Data Stewardship by Data Trusts: A Promising Model for the …
(2 days ago) WEBTowards trust-based governance of health data research Article Open access 12 January 2023. Data-driven research and healthcare: public trust, data …
https://link.springer.com/chapter/10.1007/978-3-031-29616-1_19
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3 Data Governance Principles for Healthcare Improvement
(8 days ago) WEBThe following recounts their three key data governance principles to drive massive healthcare delivery improvements. 1. Stakeholder Engagement: Starting at the Top. …
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Governance mechanisms for sharing of health data: An approach …
(7 days ago) WEBThere were three categories of articles that we identified after the initial review of abstracts and titles: 1) identification and discussion of governance mechanisms for data sharing and secondary uses of data, 2) assessment of people's/expert's attitudes and behaviours towards data sharing/secondary data use, include articles about consent
https://www.sciencedirect.com/science/article/pii/S0160791X21001007
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Learning together for better health using an evidence-based …
(3 days ago) WEBIn the context of expanding digital health tools, the health system is ready for Learning Health System (LHS) models. These models, with proper governance and …
https://bmcmedicine.biomedcentral.com/articles/10.1186/s12916-024-03416-w
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First-ever summit aims to accelerate health equity for racialized
(9 days ago) WEBWellesley Institute is looking forward to hosting Powering Equity, Canada’s first summit on the collection, use and governance of race-based data for health on …
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DeVry University's Health Equity Symposium Explores Improving
(8 days ago) WEBLisle, Ill. – May 10, 2024 – Artificial intelligence, healthcare and equity converged during DeVry University’s Bridging the Gap Between Artificial Intelligence and …
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Impact of the use of cannabis as a medicine in pregnancy, on the …
(1 days ago) WEBAbstract. Introduction: The use of cannabis for medicinal purposes is on the rise. As more people place their trust in the safety of prescribed alternative plant-based medicine and find it easily accessible, there is a growing concern that pregnant women may be increasingly using cannabis for medicinal purposes to manage their pregnancy …
https://www.medrxiv.org/content/10.1101/2024.05.14.24306797v1
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Kristen Clarke Denounces Hate at Columbia Law Commencement
(Just Now) WEBTop civil rights attorney is commencement speaker. Kristen Clarke, the Biden administration’s civil rights chief, condemned hate-based violence in a Columbia Law …
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High Court Controls Fate of Louisiana Black Voting District (1)
(1 days ago) WEBAlex Ebert. The US Supreme Court should ignore Louisiana’s claims of “election chaos” and leave alone an order eliminating one of the state’s two Black congressional …
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Lateral Partner Recruiting Must Focus on Honesty and Clear Data
(1 days ago) WEBMegan Senese. Legal experts explain the state of lateral partner recruiting. Hiring teams must build trust and manage expectations. Increasing competition for …
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