Examples Of Unconsented Health Data

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The public needs to know why health data are used without consent

(Just Now) Governments and health organizations routinely collect information about health-care system use so they can manage, administer and pay for health services. This information is referred to as administrative data, and a new piece of administrative data is created every time someone has an interaction with the … See more

https://theconversation.com/the-public-needs-to-know-why-health-data-are-used-without-consent-123669

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Ethical Issues in Consent for the Reuse of Data in Health Data

(3 days ago) WEBExamples of these include Dementia Platform UK (DPUK); and the MQ Adolescent Data Platform in the UK; pan-European initiatives such as the Electronic …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7862505/

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Ethical Issues in Patient Data Ownership - PMC - National Center …

(3 days ago) WEBA contemporary example of health care systems targeting a vulnerable population for commercial purposes is that of recovering alcoholics and those with a …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8178732/

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The public needs to know why health data are used …

(9 days ago) WEBFor example, academic researchers used unconsented data without identifying information to study the opioid epidemic. Why we have unconsented health data. Governments and health organizations …

https://www.utoronto.ca/news/public-needs-know-why-health-data-are-used-without-consent-u-t-experts

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Specific measures for data-intensive health research without …

(4 days ago) WEBIntroduction. Over the past decades, the importance of obtaining consent in medical research settings has been strongly emphasized [].However, in data-intensive …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10772063/

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Inalienable data: Ethical imaginaries of de-identified health data

(7 days ago) WEBDe-identified data may be factually alienable—it is clearly something that makes sense as an object to be transferred. However, it may be complicated in terms of …

https://www.sciencedirect.com/science/article/pii/S2667321523001051

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Patient views on research use of clinical data without consent: …

(9 days ago) WEBRecent regulatory plans in Austria, for example, made front-page news and sparked both outrage and enthusiasm because they promised research use of national …

https://www.nature.com/articles/s41431-019-0340-6

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The public needs to know why health data are used without consent

(6 days ago) WEBPeople’s data shouldn’t be. used in ways that they don’t support. Health data has a special place in this discussion given public concerns around the. world, including …

https://www.researchgate.net/publication/338659599_The_public_needs_to_know_why_health_data_are_used_without_consent

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Characterizing cyber harms from digital health Nature Medicine

(Just Now) WEBOther examples of cyber health harms include those caused by the COVID-19 infodemic, misuses of unconsented health data (such as the unconsented sale of …

https://www.nature.com/articles/s41591-022-02167-6

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Secondary research use of personal medical data: attitudes

(Just Now) WEBMaking routine clinical-care-data available for medical research requires adequate consent to legitimize use and exchange. While, public interest in supporting …

https://www.nature.com/articles/s41431-020-00735-3

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Perceptions of anonymised data use and awareness of the NHS …

(1 days ago) WEBBackground England operates a National Data Opt-Out (NDOO) for the secondary use of confidential health data for research and planning. We hypothesised …

https://researchinvolvement.biomedcentral.com/articles/10.1186/s40900-021-00281-2

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Class Actions Involving Health Data in the Wake of COVID-19

(9 days ago) WEBClass action litigation related to data privacy and data breaches in the healthcare industry is expected to trend upward in the COVID-19 era. The spike in the …

https://www.natlawreview.com/article/assessing-damages-data-privacy-and-data-breach-class-actions-involving-health-data

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Perceptions of anonymised data use and awareness of the NHS …

(1 days ago) WEBRecommendations to guide unconsented secondary health data use included that health data use should benefit patients; data sharing decisions should …

https://pubmed.ncbi.nlm.nih.gov/34127076/

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AMA Publishes Set of Privacy Principles for Non-HIPAA-Covered …

(Just Now) WEBThe American Medical Association (AMA) has published a set of privacy principles for non-HIPAA-covered entities to help ensure that the privacy of consumers …

https://www.hipaajournal.com/ama-publishes-set-of-privacy-principles-for-non-hipaa-covered-entities/

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Frontiers Unconventional data, unprecedented insights: …

(1 days ago) WEBThe use of mobility and participatory surveillance data by policymakers, for example, varied greatly and was less likely to be applied at the regional or province …

https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2024.1350743/full

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Data Sets CDC Open Technology

(Just Now) WEBData.CDC.gov is a repository of all available data sets with a Socrata Open Data API. Available categories include: Administrative, Biomonitoring, Child Vaccinations, Flu …

https://open.cdc.gov/data.html

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Perceptions of anonymised data use and awareness of the NHS …

(3 days ago) WEBConsider examples of how patient data has improved patient care but also risks and challenges. 3. Agree a list of main concerns about health data use The …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8201435/

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12. Health data National Ethics Advisory Committee

(8 days ago) WEBThis chapter provides ethical guidance on collecting new data from participants and/or individuals and accessing and reusing data that has already been collected (for …

https://neac.health.govt.nz/national-ethical-standards/part-two/12-health-data

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Patient records exposed in data breaches doubled in 2023

(5 days ago) WEBThe report, which analyzed data from the HHS’ Office for Civil Rights, found that more than 116 million records were compromised across 655 breaches — a …

https://www.healthcaredive.com/news/patient-records-exposed-healthcare-data-breaches-double-fortified-health-security/704917/

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ISO - An easy guide to understanding healthcare data analytics

(5 days ago) WEBData privacy and security: The growing storage and use of health data has already made hospitals and practitioners the targets of cybercriminals and hackers. It is the …

https://www.iso.org/healthcare/data-analytics

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Data and Statistics - Centers for Disease Control and Prevention

(3 days ago) WEBNAMCS collects data on visits to non-federally employed office-based physicians who are primarily engaged in direct patient care and, starting in 2006, a separate sample of visits …

https://www.cdc.gov/mentalhealth/data_publications/statistics-and-data-sources.html

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About Handwashing Clean Hands CDC

(8 days ago) WEBCDC has health promotion materials to encourage kids and adults to make handwashing part of their everyday lives. Share social media graphics and messages. …

https://www.cdc.gov/clean-hands/about/index.html

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The ethical use of existing samples for genome research

(2 days ago) WEB1. The primary objective of ethics committee oversight is to balance the relative benefits of the research project and the risks, including privacy risks and any …

https://www.nature.com/articles/gim2009105

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Digital health: a case of mistaken identity - STAT

(1 days ago) WEBFurther, economic predictions loosely derived from estimates of the financial impact of influencing a single endpoint won’t capture the broad benefits of digital …

https://www.statnews.com/2024/05/22/digital-health-companies-medicines/

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About Child Abuse and Neglect Child Abuse and Neglect …

(6 days ago) WEBQuick facts and stats. Child abuse and neglect are common. At least one in seven children experienced child abuse or neglect in the past year in the United States. …

https://www.cdc.gov/child-abuse-neglect/about/index.html

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To Share or Not to Share: Ethical Acquisition and Use of Medical …

(3 days ago) WEBHowever, the Health Insurance Portability and Accountability Act (HIPAA) restrictions allow patients to easily decline the use of their medical data for research and …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5001759/

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Exploring predictors and prevalence of postpartum - BMC Public …

(7 days ago) WEBBackground Postpartum depression (PPD) affects around 10% of women, or 1 in 7 women, after giving birth. Undiagnosed PPD was observed among 50% of …

https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-024-18502-0

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Perceptions of anonymised data use and awareness of the …

(6 days ago) WEB1. Understand what is meant by health data and how it is stored for primary use 2. Introduce secondary use of health data, de-identification, NHSE opt out and examples …

https://researchinvolvement.biomedcentral.com/track/pdf/10.1186/s40900-021-00281-2.pdf

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The Benefits of AI in Healthcare IBM

(7 days ago) WEBAccording to Harvard’s School of Public Health, although it’s early days for this use, using AI to make diagnoses may reduce treatment costs by up to 50% and …

https://www.ibm.com/think/insights/ai-healthcare-benefits

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About Reproductive Health Reproductive Health CDC

(6 days ago) WEBCDC’s Division of Reproductive Health focuses on issues related to reproductive health, maternal health, and infant health. For over 50 years, we have …

https://www.cdc.gov/reproductive-health/about/index.html

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OHSU coronavirus (COVID-19) response OHSU News

(6 days ago) WEBPatient care. OHSU is following the U.S. Centers for Disease Control and Prevention’s recommendations to allow critical function health care staff to return to …

https://news.ohsu.edu/2024/05/16/preparing-for-the-novel-coronavirus-at-ohsu

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Privacy in the Age of Medical Big Data - PMC - National Center for

(3 days ago) WEBAs a straightforward example, data de-identification is a common way to comply with HIPAA requirements—but de-identified data are much harder to link together when a …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6376961/

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The prevalence and factors associated with alcohol, cigarette, and

(1 days ago) WEBABSTRACT Objectives: To provide first comprehensive estimates of the prevalence of psychoactive substances: alcohol, cigarettes and marijuana and their …

https://www.medrxiv.org/content/10.1101/2024.05.21.24307637v1

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About Adverse Childhood Experiences Adverse Childhood …

(1 days ago) WEBExamples can include growing up in a household with: 1. Substance use problems. Mental health problems. Instability due to parental separation. Instability due …

https://www.cdc.gov/aces/about/index.html

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