Data Ownership In Public Health

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Ownership of individual-level health data, data sharing, and data

(4 days ago) The ownership status of individual-level health data affects the manner in which it is used. In this paper we analyze two competing models of the ownership status of the data discussed in the literature recently: private ownership and public ownership. In this paper we describe the limitations of these two models of … See more

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-022-00848-y

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Data Sharing and Global Public Health: Defining What We Mean …

(3 days ago) WEBIntroduction. Improved information technology infrastructure and the widespread availability of mobile phones have contributed to an unprecedented amount …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8521885/

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Who owns (or controls) health data? Scientific Data - Nature

(Just Now) WEBSummary. The topic of who owns health data and who should control the secondary use of health data is both complex and subject to the laws under which the …

https://www.nature.com/articles/s41597-024-02982-1

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Patient data ownership: who owns your health? - PMC

(3 days ago) WEBA second argument offered for patient ownership of health information is its potential to distribute more equitably the financial benefits that flow from the health data …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8487665/

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Who Owns the Data? Open Data for Healthcare - PMC - National …

(3 days ago) WEBIntroduction. The recent emergence of Big Data in healthcare [including large linked data from electronic patient records (EPR) as well as streams of real-time …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4756607/

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Balancing the safeguarding of privacy and data sharing - Nature

(Just Now) WEBThis research also confirms that stronger health system infrastructure is a prerequisite for enabling patient data ownership, which needs to be underpinned by …

https://www.nature.com/articles/s41431-022-01273-w

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How should we think about clinical data ownership?

(6 days ago) WEBThe concept of ‘ownership’ is increasingly central to debates, in the media, health policy and bioethics, about the appropriate management of clinical data. I argue that the language of ownership acts as a metaphor and …

https://jme.bmj.com/content/46/5/289

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Health data justice: building new norms for health data …

(4 days ago) WEBPERSPECTIVE OPEN Health data justice: building new norms for health data governance James Shaw 1 and Sharifah Sekalala2 The retention and use of health-related data by …

https://www.nature.com/articles/s41746-023-00780-4.pdf

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Who owns patient data? The answer is not that simple

(9 days ago) WEBData companies facilitate access to medical databases for research studies published to advance public health. The media can then broadcast those scientific results. At every stage in this scenario, …

https://blogs.bmj.com/bmj/2020/08/06/who-owns-patient-data-the-answer-is-not-that-simple/

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A systematic review of barriers to data sharing in public health

(6 days ago) WEBPublic health decision making has become increasingly complex and the use of data has become essential in this information age [].At the local level, data are used …

https://bmcpublichealth.biomedcentral.com/articles/10.1186/1471-2458-14-1144

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Data Equity Principles CDC Foundation

(5 days ago) WEBPublic health, including funders, project managers and community partners, rely on data when making decisions. Public health data systems need improvement for the data to be a true reflection of everyone’s life …

https://www.cdcfoundation.org/HealthEquity/data-equity-principles

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Full article: Data ownership revisited: clarifying data

(6 days ago) WEBThis is especially the case with public health data, but also with data collected in smart cities, for instance. Thus, while open data hold the potential for great …

https://www.tandfonline.com/doi/full/10.1080/2573234X.2021.1945961

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It's time for individuals to own their health data - STAT

(1 days ago) WEBTo fix this harmful state of affairs, individuals need ownership rights over their health data. As patients, as designers and engineers, and as public health …

https://www.statnews.com/2021/11/15/its-time-for-individuals-not-doctors-or-companies-to-own-their-health-data/

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Vision for Public Health Data OPHDST CDC

(7 days ago) WEBAdvancing Data for Public Health Action. CDC's vision expands on modernization efforts and focuses on critical components to advance data for public …

https://www.cdc.gov/ophdst/about/advancing-data-for-public-health-action.html

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Principles and Ethics of Collecting and Managing Health Data

(2 days ago) WEBMost countries do not have adequate policy and legal frameworks for data ownership, and in many cases, ownership claims to health information have not …

https://link.springer.com/chapter/10.1057/978-1-137-54984-6_24

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Ownership of individual-level health data, data sharing, and data

(5 days ago) WEBownership and public ownership. Main body: In this paper we describe the limitations of these two models of data ownership with respect to indi-. vidual-level …

https://www.researchgate.net/publication/364933037_Ownership_of_individual-level_health_data_data_sharing_and_data_governance

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Public Health Data Policy and Standards CDC

(Just Now) WEBPublic health relies on getting data where it needs to go to protect health. We need to ensure the right policies, authorities, data use agreements, and …

https://www.cdc.gov/surveillance/policy-standards/index.html

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Developing Public Policy To Advance The Use Of Big Data In …

(9 days ago) WEBDeveloping Public Policy To Advance The Use Of Big Data In Health Care. Axel Heitmueller, Sarah Henderson, Will Warburton, Ahmed Elmagarmid, Alex “Sandy” …

https://www.healthaffairs.org/doi/10.1377/hlthaff.2014.0771

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The Academic Viewpoint on Patient Data Ownership in the …

(3 days ago) WEBApart from being a challenge, ownership of health data is also seen as a control tool [102,103,106], controlling access to data and controlling data for biomedical …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7463395/

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Consumer Willingness to Share Personal Digital Information for …

(8 days ago) WEBKey Points. Question What factors are associated with consumers’ willingness to share their digital information for health-related uses?. Findings In this …

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2788307

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Ownership of individual-level health data, data sharing, and …

(1 days ago) WEBownership and public ownership. Main body: In this paper we describe the limitations of these two models of data ownership with respect to indi-vidual-level health data, in …

https://bmcmedethics.biomedcentral.com/counter/pdf/10.1186/s12910-022-00848-y.pdf

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Protecting patient data sharing & ownership with ethical data use

(5 days ago) WEBIn pursuit of consumer-centered healthcare, the medical industry has seen the growing prominence of patient data sharing. As consumerism has gripped the …

https://www.techtarget.com/patientengagement/answer/Protecting-patient-data-sharing-ownership-with-ethical-data-use

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Public Health Infrastructure Grant Public Health Infrastructure …

(6 days ago) WEBAn overview of CDC's Public Health Infrastructure Grant. Funding recipients. Funding was awarded to: One hundred seven (107) public health …

https://www.cdc.gov/infrastructure-phig/about/index.html

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California's Medicaid experiment, CalAIM, leans on nonprofits to …

(1 days ago) WEBFor instance, L.A. Care Health Plan, the largest Medi-Cal insurer in California, has given $66 million to community organizations for hiring and other CalAIM needs, …

https://www.npr.org/sections/health-shots/2024/05/14/1251004146/california-medicaid-experiment-calaim-medi-cal-nonprofits

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Are Schools Too Focused on Mental Health? - The New York Times

(8 days ago) WEBMental health awareness campaigns, they argue, help some young people identify disorders that badly need treatment — but they have a negative effect on others, …

https://www.nytimes.com/2024/05/06/health/mental-health-schools.html

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Drug overdose deaths dropped slightly in 2023 but remain high

(4 days ago) WEBUpdated Wednesday May 15 at 1:25 p.m. ET. Preliminary data released Wednesday from the Centers for Disease Control and Prevention found fatal drug …

https://www.npr.org/sections/health-shots/2024/05/15/1251239829/us-drug-overdose-deaths-provisional-2023

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An FDA approved device offers a new treatment for ringing in the …

(3 days ago) WEBMore than 25 million adults in the U.S. have tinnitus, a condition that causes ringing or buzzing in the ears. An FDA approved device that stimulates the tongue, …

https://www.npr.org/sections/health-shots/2024/04/15/1244501055/tinnitus-hearing-loss-ringing-ear-noise

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Federal Register :: Medical Devices; Laboratory Developed Tests

(6 days ago) WEBFinally, as further discussed in the NPRM, tests manufactured and offered for use exclusively for public health surveillance are distinct from other tests where: (1) …

https://www.federalregister.gov/documents/2024/05/06/2024-08935/medical-devices-laboratory-developed-tests

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H.R.8388 - 118th Congress (2023-2024): To prohibit the purchase

(Just Now) WEBSummary of H.R.8388 - 118th Congress (2023-2024): To prohibit the purchase, ownership, or possession of enhanced body armor by civilians, with exceptions.

https://www.congress.gov/bill/118th-congress/house-bill/8388

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Dallas TX Real Estate - Dallas TX Homes For Sale Zillow

(3 days ago) WEBExplore the Dallas TX real estate market with Zillow, the leading online platform for home buyers and sellers. Zillow has 2683 homes for sale in Dallas TX, ranging from cozy …

https://www.zillow.com/dallas-tx/

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Drug overdose deaths were down in US in 2023. But not in these …

(7 days ago) WEBA National Institutes of Health study this week said law enforcement seized more than 115 million pills containing illicit fentanyl in 2023, a dramatic increase since …

https://www.usatoday.com/story/news/health/2024/05/15/drug-overdose-deaths-2023-data/73670888007/

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IMPORTANT: Please review your MS ‘Public’ Teams group(s) …

(1 days ago) WEBLa version française suit. The following is a message from McGill IT Services. ALL owners of "Public" MS Teams groups are required to audit their groups. If you are …

https://www.mcgill.ca/minerva-guests/channels/news/important-please-review-your-ms-public-teams-groups-may-27-2024-357285

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Frontiers Who Owns the Data? Open Data for Healthcare

(9 days ago) WEBIntroduction. The recent emergence of Big Data in healthcare [including large linked data from electronic patient records (EPR) as well as streams of real-time …

https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2016.00007/full

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As mental health crisis in Israel grows, child psychiatrists leave

(3 days ago) WEBAs Mental Health Crisis in Israel Grows, Child and Teen Psychiatrists Leave Public Sector in Droves. Data presented at the Knesset Health Committee shows that …

https://www.haaretz.com/israel-news/2024-05-16/ty-article/.premium/as-mental-health-crisis-in-israel-grows-child-psychiatrists-leave-public-sector-in-droves/0000018f-81df-d720-a79f-abdf54270000

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Broad Public Support for Legal Abortion Persists 2 Years After Dobbs

(7 days ago) WEBThis share has grown 4 percentage points since 2021 – the year prior to the 2022 decision in Dobbs v. Jackson Women’s Health Organization that overturned Roe. …

https://www.pewresearch.org/politics/2024/05/13/broad-public-support-for-legal-abortion-persists-2-years-after-dobbs/

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Ownership of individual-level health data, data sharing, and data

(3 days ago) WEBData ownership. The ownership status of individual-level health data could affect biomedical research, individual freedoms, and the free-market economy …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9617739/

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Ontario reports first death from measles in over a decade

(8 days ago) WEBTORONTO, May 17 (Reuters) - An Ontario child under the age of five has died of measles, the first such case in the Canadian province in more than a decade, …

https://www.reuters.com/world/americas/ontario-reports-first-death-measles-over-decade-2024-05-17/

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