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The lonely, isolating & alienating implications of ME/CFS

WebAdditionally, a family who receives a diagnosis of ME/CFS for one of its members may experience disruptions of the family dynamic including sibling jealousies …

Actived: 8 days ago

URL: https://wames.org.uk/cms-english/the-lonely-isolating-alienating-implications-of-me-cfs/

ME: a global health scandal – Stop ignoring ME video – ME …

WebProduced by Broken Battery, 2 May 2019. ME is one of the most misunderstood diseases. 1 in 5 parents face child protection proceedings, patients have …

Category:  Health Go Health

Key Facts WAMES (Working for ME in Wales)

WebME & CFS – facts & figures. 1. ME (Myalgic Encephalomyelitis) is classified by the World Health Organisation as a neurological condition at ICD-10 G93.3 and can be fluctuating, …

Category:  Health Go Health

Integration of DNA methylation & health scores identifies …

WebResearch abstract: Integration of DNA methylation & health scores identifies subtypes in myalgic encephalomyelitis/chronic fatigue syndrome, by Wilfred C de Vega, …

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Research: Causal attributions & perceived stigma for ME/CFS

WebIn a sample of 499 participants with self-diagnosed ME/CFS, we investigated perceived stigma as a pathway through which perceived others’ causal attributions relate …

Category:  Health Go Health

CRISPR: Could a breakthrough in gene editing technology help …

WebHealth rising blog post, by Stephen La Corte, 8 June 2018: CRISPR: Could a Breakthrough in Gene Editing Technology Help ME/CFS and Fibromyalgia? (Thanks to …

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Cardiff & Vale UHB plans ME/CFS service improvement

WebCardiff and Vale’s University Health Board’s Chief Executive Suzanne Rankin shares their plans for improved care for ME with WAMES: @cardiffandvaleuhb. …

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‘Hello my name is’ campaign in Wales

WebThe Betsi Cadwaladr University Health Board is joining a massive social media movement launched by a terminally ill doctor from the north of England. The ‘Hello …

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BCUHB plan to improve ME/CFS services in north Wales

WebClaire Jones, the Betsi Cadwaladr Health Board’s Long COVID Service lead tells WAMES how they are planning to extend the Long COVID service to provide …

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Swansea Bay UHB implements ME/CFS NICE guideline

WebThe SBUHB Rheumatology Occupational Therapy Service. The Occupational Therapy service is our only specific service for those with a diagnosis of ME/CFS. This is …

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NICE guideline implementation in Wales update

WebWAMES has been asking Health Boards in Wales during 2022 how they are implementing the 2021 ME/CFS NICE guideline. Although progress is excruciatingly …

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Cell danger response biology – the new science that connects

WebPerspective: Cell danger response biology the new science that connects environmental health with mitochondria and the rising tide of chronic illness, by Robert K …

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West Wales Chronic Pain service revamp

WebIt aims to improve patient experience whilst reducing waiting times. “The chronic pain service places great emphasis on enabling patients to regain control of their …

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Visible: the app designed to make the invisible, visible

WebThe app designed to track the different symptoms of ME and the effects of Long Covid, with the Beta version now being open to the general public. Created by …

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Wales prioritises healthcare for post-viral condition Long COVID

WebHealth Minister Eluned Morgan promises more help for people with Long COVID in Wales . Health Minister Eluned Morgan announced the findings of an …

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A person with ME responds to MS drug Copaxone

WebCopaxone reduces the number and severity of MS flares or relapses. In Rachel’s case, however, Copaxone didn’t appear to just slow the progression of her …

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Is the concept of prudent healthcare becoming a reality

WebAlmost exactly a year ago, the phrase ‘prudent healthcare’ started to be discussed in Wales as a possible way of meeting these challenges. Health …

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Why GET and CBT are controversial in CFS

WebA fourth reason why GET and CBT are controversial is that, despite being frequently prescribed, these treatments are not effective in patients with CFS. …

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