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Research and resources Understanding patient data

WebPutting transparency into practice. Transparency is important for creating trustworthy systems for managing data but there isn't a common understanding of what it means. …

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URL: https://understandingpatientdata.org.uk/research-and-resources

What are the risks around patient data

WebThere are huge benefits when patient data is used responsibly to save lives, improve health and care, and advance medical research. However, it is true that sharing patient data will …

Category:  Medical Go Health

Who decides how patient data is accessed

WebWho are they? The National Data Guardian for Health and Care (NDG) advises and challenges the health and care system to ensure people’s confidential information is …

Category:  Health Go Health

What are the best words to use when talking about data

WebThe best way of avoiding this is to talk about ‘ information from your patient record ’. Don’t use terms like ‘citizen’, ‘consumer’ and ‘user’ – our research suggested people much …

Category:  Health Go Health

How is data kept safe

WebA common framework for assessing and explaining how data is being kept safe is the ‘Five Safes’ Framework. This was initially developed by the Office for National Statistics and …

Category:  Health Go Health

Understanding Patient Data

WebOur animation series show how patient data is used to improve health and care, and the safeguards to protect confidentiality. They are available for anyone to reuse under a CC …

Category:  Health Go Health

Making better use of NHS data: Where we’re at with the Federated …

WebUnderstanding Patient Data supports conversations with the public, patients and healthcare professionals about the uses of health information for care and research.

Category:  Health Go Health

About us Understanding patient data

WebUnderstanding Patient Data was set up in 2016 to support conversations with the public, patients and healthcare professionals about uses of health and care data. It was …

Category:  Health Go Health

Why is it important to use patient data

WebImproving health, care and NHS services. If small amounts of data from many patients are linked up and pooled, researchers and doctors can look for patterns in the data, helping …

Category:  Health Go Health

News Understanding patient data

WebWorking with patients & the public to explain access to health data. Understanding Patient Data supports conversations with the public, patients and …

Category:  Health Go Health

Choices in how your data is used beyond individual care

WebThe 2013 NHS Constitution for England stated that “you have the right to request that your confidential data is not used beyond your own care and treatment and to have your …

Category:  Health Go Health

A number of studies have explored how people feel about the …

WebLast updated 01.08.2019 4 Health data storage and public cloud use (2018) ComRes interviewed over 2,000 people as part of the Corsham Institute report about health data

Category:  Health Go Health

Insights from Black & South Asian people on patient data

WebWhy this research? Understanding Patient Data prioritised learning more about the views of Black and South Asian people when it comes to sharing health data because of the …

Category:  Health Go Health

Case studies Understand Patient Data

WebThere is a wide range of ways that patient data can be used to provide better care and improve health. Explore the case studies to learn more. Please let us know if you have …

Category:  Health Go Health

Ethics, governance and regulation Understanding patient data

WebWhere advances in data science have the power to create valuable insights into health, illness and treatments, it may be ethically the right thing to use patient data. But there are …

Category:  Health Go Health

How is patient data used

WebThe types of organisations that can use patient data include: NHS providers and commissioners: use data to monitor trends and patterns in hospital activity, to assess …

Category:  Health Go Health

Introducing patient data Understanding patient data

WebWhat is patient data? Whenever you interact with the health service, such as during a GP appointment or hospital visit, they collect data about you, your health and your lifestyle. …

Category:  Health Go Health

Can private sector organisations access patient data

WebResearch shows that most people are comfortable with the private sector having access to patient data if a few conditions are met, with the most important factor being that the …

Category:  Health Go Health

Long Read: What does the Data Protection and Digital Information …

WebNicola Hamilton, Head of Understanding Patient Data, gives an overview of the Data Protection and Digital Information Bill and ten key changes that are relevant to …

Category:  Health Go Health

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