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Alpers syndrome UMDF

WEBAlpers syndrome is a mitochondrial disease that primarily affects the brain, vision, muscles, and liver. It goes by many names, including Alpers disease and Alpers-Huttenlocher …

Actived: 8 days ago

URL: https://www.umdf.org/alpers/

mitoSHARE Registry UMDF

WEBmitoSHARE is a worldwide patient-populated registry initiative stewarded by UMDF. The goal of the registry is to advance scientific research using data gathered from patients …

Category:  Health Go Health

Mitochondrial Disease Fact Sheet

WEBondrial disease find themselves.Mitochondrial disease can afect any. rgan of the body and at any age. Symptoms are extreme. y diverse and often progressive. They include: …

Category:  Health Go Health

Mitochondrial Deletion Diseases UMDF

WEBA common form of mitochondrial disease results from absence (or deletion) of a segment of the mitochondrial DNA (mtDNA) circle. Like most mtDNA diseases, these disorders …

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Find a Doctor Web 2.0 Directory

WEBMitochondrial Care Network. The Mitochondrial Care Network (MCN) represents a group of physicians at medical centers across the country that have expertise and experience in …

Category:  Medical Go Health

Advocacy Central UMDF

WEBCongress needs to hear your voice! The UMDF Advocacy Center is your one-stop page for supporting legislation that helps move mitochondrial disease research, …

Category:  Health Go Health

Advocacy Update – May 2024: FAA Reauthorization, Telehealth

WEBRecent Posts. An Update from UMDF Board Chair Dr. Alicia Palladino; Advocacy Update – July 2024: Watch Mito Caucus Briefing, A Win with NIH Language, and more

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Advocacy Update – July 2024: Watch Mito Caucus Briefing, A Win …

WEBUMDF Washington Update. House FY 2025 Labor-HHS Spending Bill – NIH Research Language Supported by UMDF Included. We are pleased to announce that the Fiscal …

Category:  Health Go Health

IHPs, 504 Plans, and IEPs: What’s the Difference

WEBThe 504 Plan can follow the student to college and is also applicable in the workplace. 504 Plans are not as involved as, and do not cover all of the things covered in, IEPs (see …

Category:  Health Go Health

UMDF Marks World Mitochondrial Disease Week, September 18 – …

WEBThis coming week, September 18 – 24, marks World Mitochondrial Disease Week. It provides a time for the entire mito community to share our joys, our sorrows, our hopes, …

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UMDF Family Impact Funds Award $200k Grant to CHOP to …

WEBThe United Mitochondrial Disease Foundation (UMDF) is pleased to announce a new grant of $200,000 awarded to Suraiya Haroon, PhD, within Children’s Hospital of …

Category:  Health Go Health

Ask The Mito Doc Webcast Series – Special Coronavirus Update

WEBDear Patient Attendee – Thank you for attending the most recent Ask the Mito Doc webcast. Many asked if COVID-19 vaccine is safe for my specific mitochondrial disease (Leighs, …

Category:  Health Go Health

MITO 101 – Therapies for Mitochondrial Disease Symptoms

WEBOVERVIEW. Utilize an individualized, multidisciplinary approach to the care of the patient with mitochondrial disease including the “allied health” professions such as physical, …

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Conference UMDF

WEB8085 Saltsburg Road, Suite 201. Pittsburgh, PA 15239. 1-888-317-UMDF (8633) [email protected]. Donate. Mission of UMDF.

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GENERAL RESOURCES

WEBGlobal Genes is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare …

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Research Update from 2023 accelerators Runner-Up Jonathan …

WEBIn June 2023, Jonathan Dietz, PhD presented his research project “The Role of Metaxins in Mitochondrial Health and Homeostasis” during the Big Pitch event at UMDF’s annual …

Category:  Health Go Health

Symposium 2023 – Keeping You Safe UMDF

WEBUMDF Mitochondrial Medicine 2023 COVID-19 Protocols as of February 13, will include: At this time, we are not requiring attendees to attest to being vaccinated. …

Category:  Medicine Go Health

Coronavirus UMDF

WEBTo promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

Category:  Health Go Health

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