Patientsrisingstories.org

Chronic Illness Journey Patients Rising Stories

WEBDespite being a RN, my chronic illness journey is like so many women, filled with misdiagnosis, medical gaslighting and inadequate treatment. I also watched as my mom …

Actived: 7 days ago

URL: https://patientsrisingstories.org/story/30-years-to-diagnosis-and-im-a-nurse/

Ménière’s Disease Diagnosis Patients Rising Now

WEBI had had Ménière’s disease for several years and learned I was born with Ehlers-Danlos syndrome, but didn't get diagnosed with either until 20 years old. From there, I started …

Category: Health Go Health

Illness Misdiagnosed & Misunderstood Patients Rising Stories

WEBMy Story. My name is Kaitlyn and in 2018 during my first year of college, my illnesses started to really pop up in my life. I was diagnosed with Crohn’s Disease in 2020 right …

Category: Health Go Health

Caregiver for Chronically Ill Patients Rising Stories

WEBLearn how to stop and listen to the chronically ill and/or disabled person. Their stories are integral to learning how to best come alongside to offer actual help and also to improve …

Category: Health Go Health

Healthcare in America Patient Advocacy Patients Rising Stories

WEBOur goal is to connect other patients, caregivers, physicians, the media, health policy experts and allied healthcare professions — in order to elicit discussions of realistic …

Category: Health Go Health

PANDAS: ultra rare diagnosis and the journey after

WEBThis resulted in many mental health issues including ADHD, OCD, Tourette's/tics, depression, anxiety, dyslexia, dyscalculia, issues reading social cues, insomnia, suicidal …

Category: Health Go Health

Healthcare Issues Patient Voices Patients Rising Stories

WEBShare your insights, challenges and what keeps you going. Share Your Story. PATIENTS RISING STORIES. 700 12th St. NW 700, Suite 700. Washington, DC 20005. 202-750 …

Category: Health Go Health

Smiling Despite the Pain

WEBA smile through pain is a conscious choice to choose joy, however fleeting, in that moment. It's a common chronic pain phrase to say that you paste on a "fake smile" to get through …

Category: Health Go Health

Scleroderma Health Literacy Patients Rising Stories

WEBScleroderma is an autoimmune condition that causes fibrosing of the skin and internal organs. It is a terminal illness of which there is currently no cure. The word scleroderma …

Category: Health Go Health

Medical Gaslighting had me doubting my disease

WEBOne time is easy to compartmentalize or explain away; experiencing gaslighting repeatedly causes so much pain. I began to question every symptom I had. I began to doubt how I …

Category: Health Go Health

Assisted Living Residence vs Personal Care Home: What's the …

WEBThere are fundamental differences between a personal care home (PCH) and an assisted living residence (ALR). In Pennsylvania, both types of homes are licensed under the …

Category: Health Go Health

Chronic pain and how it changed my life

WEBRecently, opioid hysteria has led to altered prescribing guidelines, making it harder for chronic & intractable pain patients to obtain opioids for pain relief, even if they had …

Category: Health Go Health

Intravenous Immunoglobulin for life

WEBMy primary physician prescribed antibiotics based on a culture that revealed a staph infection. Within a week, I felt much better, my cough cleared, and I got on with life…for …

Category: Health Go Health

Duchenne Muscular Dystrophy – fighting for what’s right

WEBMy Story. My sons were diagnosed with Duchenne muscular dystrophy (DMD) when attending a parochial school in our community. This wasn’t our first family diagnosis of a …

Category: Health Go Health

Pulmonary Arterial Hypertension Patients Rising Stories

WEBMy Story. In January 2018, we relocated to Colorado Springs, Colorado for my husband’s job. My earliest memory of difficulty breathing was when we arrived in Colorado. One …

Category: Health Go Health

More than one diagnosis at a time

WEBLooms for Lupus is a non-profit corporation providing resources and awareness to minority families and those affected by Lupus, Fibromyalgia, Mental health and other …

Category: Health Go Health

Submit Your Patient Story Patient Voices Patients Rising Stories

WEBPatients Rising Stories allows you to search and browse our innovative patient voices map and submit your patient story.

Category: Health Go Health

Occipital Neuralgia

WEBON is a condition, usually caused by a whiplash injury, where the occipital nerves that lie in the back of your head become inflamed and compressed. Some symptoms include …

Category: Health Go Health

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