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Healthcare Insurance and Disability

WEBThe Foundation for Health Coverage Education offers a state-by-state guide of healthcare choices. It’s also important to understand your rights when it comes to insurance, health …

Actived: 9 days ago

URL: https://marfan.org/resources/patients/healthcare/

Marfan Syndrome Signs, Symptoms, & Diagnosis Marfan …

WEBWe provide a supportive community for everyone affected by Marfan syndrome, Loeys-Dietz, VEDS, and related conditions. Individuals, family members, …

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Resources for Healthcare Professionals

WEBResources for You. The diagnosis of Marfan syndrome is often complex. Our diagnostic tool, Marfan DX, offers the latest Z-score calculators for adults and children, …

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EARLY INVESTIGATOR GRANT GUIDELINES

WEBPlease direct all questions and correspondence to: Josephine Grima, PhD Chief Science Officer. The Marfan Foundation. 22 Manhasset Avenue Port Washington, NY 11050. …

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VICTOR A. McKUSICK FELLOWSHIP V GUIDELINES

WEBThe Marfan Foundation is requesting proposals to the Victor A. McKusick Fellowship Grant program. The fellowship program is designed to provide financial support for the career …

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Stickler Syndrome Causes, Signs, & Symptoms Marfan Foundation

WEBStickler syndrome is a group of genetic conditions that affects connective tissue, specifically collagen. The condition is characterized by facial abnormalities, ocular problems, …

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2020 Atlanta Walk for Victory

WEBWalk for Victory is The Marfan Foundation’s nationwide walk program held in various cities across the country to bring the Marfan syndrome and related conditions community …

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Donate to Team Cassie 2018

WEBTeam Cassie -- headed by Alix McLean Jennings and Ezra Jennings -- is in its 9th year and will be running the Superhero Half Marathon in Morristown, New Jersey on Sunday, …

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The Marfan Foundation’s Virtual Conference

WEB312-726-7500. Conference attendees must book their own rooms directly with the hotel to receive our discounted rates. The last day to book rooms and receive the discounted …

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Mental Health with Marfan Syndrome (in a Post-2020 World)

WEBMental Health with Marfan Syndrome (in a Post-2020 World) February 14, 2022. By Latasha Doyle. When you have a lifelong condition like Marfan syndrome, your …

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Nutrition, Weight, and Quality of Life – Part 1 of 3

WEBNutrition, Weight, and Quality of Life – Part 1 of 3. I am so excited about The Marfan Foundation’s initiative to focus on the quality of life issues that affect our …

Category:  Nutrition Go Health

Lungs in Marfan Syndrome

WEBMany people with Marfan syndrome and some related disorders experience pulmonary complications, or problems with their lungs. If you have Marfan syndrome, it is important …

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Heart and Blood Vessels

WEBHeart and Blood Vessels in Marfan Syndrome. People with Marfan syndrome frequently have problems with their heart and blood vessels. Sometimes, these problems are very …

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Need-to-Know Information for the TEACHER

WEBTHE MARFAN FOUNDATION NEED-TO-KNOW INFORMATION FOR THE TEACHER | 1 INTRODUCTION Marfan syndrome is a life-threatening genetic condition that causes …

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Top 10 Benefits of Remote Jobs for those with a Chronic Condition

WEBHere are my ten benefits to working remote with a chronic condition: 1. Lower Daily Costs. Day to day charges are cut down or completely out when working from …

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Jim Cavan: The Journey to Backpack Health

WEBJim Cavan: The Journey to Backpack Health. September 24, 2018. By Jim Cavan. Maggie, with her mom, Jennifer, at the Foundation’s Boston Walk for Victory in …

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Pregnancy and Marfan Syndrome: An Update from Melissa L.

WEBBy Dr. Melissa L. Russo. Marfan syndrome is a connective tissue disorder that has effects on the heart, blood vessels, ligaments and bones. The aorta is the main artery that …

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