Lupus.bmj.com

Patient-reported outcome measures for use in clinical …

WebIntroduction. SLE is a chronic inflammatory autoimmune disorder with variable multisystem involvement, an unpredictable …

Actived: 1 days ago

URL: https://lupus.bmj.com/content/5/1/e000279

Clinical trial outcomes for SLE: what we have and what we need

WebAdditionally, e-health solutions can enhance patient education and self-management, which constitute essential elements of the non-pharmacological management of SLE.70 71. …

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Clinical, laboratory and health-related quality of life …

WebIntroduction. Systemic lupus erythematosus (SLE) is a chronic autoimmune disease associated with considerable morbidity, increased mortality and poor health-related quality of life (HRQoL).1, 2 Belimumab …

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SF-36v2 and FACIT-Fatigue quality of life improvements with …

WebObjective Explore organ-specific SLE burden by assessing health-related quality of life (HRQoL) and fatigue changes associated with Safety of Estrogens in Lupus …

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P112 Association of lupus low disease activity with health-related

WebObjective Accurate disease assessment remains challenging in complex and heterogeneous diseases such as systemic lupus erythematosus (SLE). Systemic Lupus Erythematosus …

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Generating evidence to inform health technology …

WebIntroduction. SLE is a complex autoimmune disease that can affect many systems of the body and is characterised by an extremely heterogeneous presentation of symptoms.1 The estimated prevalence of SLE is low, …

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The Care-coordination Approach to Learning Lupus …

WebObjective The Care-coordination Approach to Learning Lupus Self-Management (CALLS) study was designed to improve SLE disease self-management. This study aims to assess the benefits of the intervention …

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Current and future therapies for SLE: obstacles and …

WebPatients with SLE have significantly worse health-related quality of life than healthy controls or patients with other chronic diseases.4 Although 5-year survival for patients with SLE has improved from 50% in the 1950s to …

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Real-world burden of systemic lupus erythematosus in the USA: a

WebObjective SLE is a chronic, multiorgan, autoimmune disease; however, current prevalence estimates are dated and often from non-generalisable patient populations, and quality of …

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Remission and low disease activity in systemic lupus …

WebIntroduction. SLE is a chronic disease with a relapsing remitting course. Disease activity over time is associated with damage accrual, poor long-term outcomes and comorbidities.1–3 Thus, the control of disease …

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P80 Sexual health in systemic lupus erythematosus: a cross …

WebSexual health plays an essential role in these patients’ quality of life and its assessment should be part of routine clinical care. [1]: #T1. Background/Purpose Systemic Lupus …

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Health information use by patients with systemic lupus …

WebObjective We conducted an international survey of patients with SLE to assess their access, preference and trust in various health information sources pre-COVID-19 and during the …

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Severe flares are associated with a poorer health-related quality of

WebBackground Flares in patients with SLE, regardless of their severity, have been associated with damage accrual. However, their impact on health-related quality of life (HRQoL) has …

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Achieving remission or low disease activity is associated with …

WebSimilarly, both states were associated with a lower probability of SLE flares, hospitalisations and a better health-related quality of life, in particular the physical domain. Conclusion …

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Systemic lupus in the era of machine learning medicine

WebArtificial intelligence and machine learning applications are emerging as transformative technologies in medicine. With greater access to a diverse range of big datasets, …

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Disease and economic burden increase with systemic lupus …

WebObjective To assess the economic burden of patients with SLE by disease severity in the USA 1 year before and after diagnosis. Methods Patients aged ≥18 years with a first SLE …

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To treat or not to treat with immunosuppressive therapy: …

WebThe burden of mental health disorders on psychological, social and occupational functioning was assessed by the psychiatrist during the clinic visit using the Global Assessment of …

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Differences in reproductive health discussions in an urban Hispanic

WebObjective Management of reproductive health-related issues is crucial for patients with SLE, given this is a disease that primarily affects women of childbearing age. Little is known as …

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Real-world treatment patterns, healthcare resource utilisation and

WebObjective To examine the effects of belimumab initiation on healthcare resource utilisation (HCRU) and costs in SLE. Methods This retrospective observational cohort study used …

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Evaluating the real-world effectiveness of belimumab in patients …

WebResults Of 495 patients included, between 21.0% and 52.1% had ≥1 record for each of the disease activity measures or laboratory values in the pre-index and post-index periods …

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259 Healthcare system affecting systemic lupus erythematosus in …

WebBackground There are between-country disparities in healthcare systems in Asia and Pacific region. The aim of the study was to construct profiles of disparities in healthcare system …

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