Cysticfibrosis.org.uk

How does cystic fibrosis affect the body

WEBBody image. Cystic fibrosis (CF) causes the body to produce thick mucus, which affects the lungs and digestive system in particular. Take a look at our interactive body to find out …

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URL: https://www.cysticfibrosis.org.uk/what-is-cystic-fibrosis/how-does-cystic-fibrosis-affect-the-body

Jon’s story: Kaftrio, side effects and mental health

WEBOur Responses to Kaftrio factsheet, provides more information or reach out to our Helpline at 0300 373 1000 or 020 3795 2184, Monday–Friday 10am–4pm, or on …

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Health and wellbeing with cystic fibrosis

WEBFamily planning. If you or your partner have CF, and you’re thinking about having children, you might be grappling with a number of issues. Our family planning information has …

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Cystic fibrosis and bone health

WEB2 Cystic fibrosis and bone health Introduction As we get older our bones become thinner and weaker, and may be more likely to fracture. In people with cystic

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Crucial insights from our patient experience survey of children’s CF …

WEBOur original survey of paediatric CF care in 2019 found that nearly half of respondents (47%) who had needed a CF social worker had been unable to see one, as …

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Parents and children

WEBParents and children. Find out more here about caring for a child with CF. Parents and children. New diagnosis. Pre-school and primary school. Secondary school. The early …

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Looking after your mental health and wellbeing in difficult times

WEBYou can call the Helpline team on 0300 373 1000 or 020 3795 2184, or email [email protected]. Samaritans - If you need someone to talk to about your …

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Latest update on the NICE appraisal of Orkambi, Symkevi and Kaftrio

WEBFour years ago, when the deal was reached to give people with CF access to Orkambi and Symkevi (Kaftrio was added in 2020), it was agreed that data would be …

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Adam's story: "Kaftrio has been the most significant change of my …

WEBAdam's story: "Kaftrio has been the most significant change of my life". We sat down with Adam, a graphic designer who has CF, who spoke to us all about his …

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Cystic fibrosis and mental health

WEBCF and mental health. We all have mental health, good or bad, in the same way that we have physical health, and that means people with CF can experience …

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Calcium and bone health in cystic fibrosis

WEBCystic fibrosis and bone health Our bones grow during childhood, and large amounts of calcium are needed - especially during the pubertal growth spurt.

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Key findings from the 2021 CF Registry Report

WEBOver 100 women with CF had a baby in 2021 - a near doubling in number from 2020. The 2021 CF Registry Report spans an eventful year, with the ongoing …

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Kaftrio – complex and individual experiences

WEB6 • Managing disappointment – Kaftrio affects everyone differently, and if you or someone close to you has not experienced the benefits you hoped for or expected, it’s natural

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Tackling health inequality in the CF community

WEBThe cost of living with cystic fibrosis (CF) can often feel overwhelming, with the COVID-19 pandemic only adding to the financial uncertainty and hardship many in …

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Going on holiday with cystic fibrosis

WEBHere to help. Find out how to contact our wonderful helpline staff by telephone and email. They’re here Monday to Friday to answer your questions, help you access support or …

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Individual Healthcare Plan

WEBIndividual Healthcare Plan cysticfibrosis.org.uk ©Cystic Fibrosis Trust 2018.Registered as a charity in England and Wales (1079049) and in Scotland (SC040196). A company …

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Cystic fibrosis in adulthood

WEBHowever, as people with cystic fibrosis live longer into adulthood, they are encountering new challenges and issues. Some of the issues you develop as you get older are …

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