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Welcome NINDS Common Data Elements

WEBThe NINDS strongly encourages researchers who receive funding from the Institute to ensure their data collection is compatible with these common data elements (CDEs). …

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URL: https://commondataelements.ninds.nih.gov/

Headache NINDS Common Data Elements

WEBHeadache Start-up Resource Listing: All Core and Supplemental–Highly Recommended CDEs recommended for Headache study start-up. Headache Highlight Summary: …

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General (For all diseases) NINDS Common Data Elements

WEBThe National Institute of Neurological Disorders and Stroke (NINDS) and other Federal agencies and international organizations have the common mission of developing data …

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NeuroRehab NINDS Common Data Elements

WEBThe National Institute of Neurological Disorders and Stroke (NINDS), in partnership with the National Center for Medical Rehabilitation Research (NCMRR) of the National Institute …

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Epilepsy NINDS Common Data Elements

WEBEpilepsy Start-up Resource Listing: All Core and Supplemental–Highly Recommended CDEs recommended for Epilepsy study start-up. Epilepsy Highlight Summary: Overview …

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Report Viewer NINDS Common Data Elements

WEBReport Viewer. Supplemental: Acute Hospitalized TBI, Moderate/Severe TBI, and Epidemiology in TBI. The Health and Behavior Inventory (HBI) consists of 20 items that …

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Report Viewer NINDS Common Data Elements

WEBReport Viewer. The Centers for Disease Control and Prevention's (CDC) 14-item HRQOL "Healthy Days Measure" survey allows subjects to rate their overall health status and …

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Neuromuscular Diseases NINDS Common Data Elements

WEBThe first set of Common Data Elements (CDEs) for Neuromuscular Diseases was developed in 2011. To create a comprehensive set of CDEs for Neuromuscular …

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Project Overview NINDS Common Data Elements

WEBThe CDE Project is a resource to help clinical investigators employ standardized data collection techniques as they design and conduct new clinical studies. The use of CDEs …

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Myasthenia Gravis NINDS Common Data Elements

WEBThe first set of Common Data Elements (CDEs) for Myasthenia Gravis was developed in 2011. To create a comprehensive set of CDEs for Neuromuscular Diseases, the NINDS …

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Parkinson's Disease NINDS Common Data Elements

WEBParkinson's Disease Start-up Resource Listing: All Core and Supplemental–Highly Recommended CDEs recommended for Parkinson's Disease study start-up. Parkinson's …

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Mitochondrial Disease NINDS Common Data Elements

WEBOrganized by domains and subdomains often used in clinical studies, data standards include: Mitochondrial Disease Start-up Resource Listing: All Core and …

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Stroke NINDS Common Data Elements

WEBOrganized by domains and subdomains often used in clinical studies, data standards include: Stroke Start-Up Resource Listing: All Core and Supplemental–Highly …

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Huntington’s Disease NINDS Common Data Elements

WEBData Standards. Organized by domains and subdomains often used in clinical studies, data standards include: • CDEs — Classified as Core, Supplemental–Highly Recommended, …

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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

WEBThe first set of Common Data Elements (CDEs) for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) was developed in partnership with the Centers for Disease …

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Report Viewer NINDS Common Data Elements

WEBReport Viewer. Recommendation for use: Indicated for studies requiring a measure of emotional impairment. The Beck Depression Inventory II (BDI-II) is a widely used 21 …

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Report Viewer NINDS Common Data Elements

WEBRecommendations for Use: Indicated for studies requiring a Global Health-Related Quality of Life measure. The usage of individual item banks are recommended for the following …

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Report Viewer NINDS Common Data Elements

WEBThe 21 questions are divided into eight categories: general health perception (1 item), incontinence impact (1 item), role limitations (2 items), physical limitations (2 items), …

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Report Viewer NINDS Common Data Elements

WEBThe PROMIS Scale v1.2 - Global Health (also referred to as PROMIS-10) is a ten-item patient reported measure of physical, mental and social health. Items query general …

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