Camraredisease.org

Apply for a Rare Disease Passport with CamRARE

WEBAnyone with a rare or undiagnoised condition of any age, anywhere in the world, is welcome to use our Rare Patient Passport template to create their own personalised healthcare …

Actived: 3 days ago

URL: https://www.camraredisease.org/rare-patient-passport/

ARDEnt (Action for Rare Disease Empowerment

WEBAt the beginning of the Covid-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment (ARDEnt). The ARDEnt …

Category: Health Go Health

RAREsummit21 Speakers

WEBOver 40 key opinion leaders are taking part in panel discussions, fireside chats, leading workshops and live innovation pitching. Learn more about the impact of their work, their …

Category: Health Go Health

Rare Disease Innovation and Collaboration – CamRARE at the …

WEBCamRARE host rare disease session at Health Horizons. Cambridge Biotech week, which ran from the 25th to the 28th of June was a brand new festival of …

Category: Health Go Health

Sensmart – providing multi-sensory solutions

WEBSuggesting solutions. Aisha came up with the idea of Sensmart and co-founded it with Alex Chikhani. Sensmart provides a multi-sensory experience, combining …

Category: Health Go Health

International Conference on Public Health and Healthcare …

WEBThe International Conference on Public Health and Healthcare Management – Hybrid Event (Public Health – 2022) will be organized in London, UK from September …

Category: Health Go Health

Newborn Screening- A Primer with Dr Lucy McKay, CEO of

WEBStarting the Conversation. However, the concept and process of newborn screening is not without its challenges. One challenge has become increasingly …

Category: Health Go Health

CamRARE's RAREsummit23 12 Oct

WEBCookie Duration Description; cookielawinfo-checbox-analytics: 11 months: This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the …

Category: Health Go Health

Shocking mistreatment of mother in rare disease case

WEBBy Mike Scialom- [email protected] Published: 21:26, 09 December 2018 | Updated: 21:29, 09 December 2018

Category: Health Go Health

World Orphan Drug Congress USA 2022

WEBWorld Orphan Drug Congress USA 2022 Breaking down silos and fostering collaboration to help rare disease patients The World Orphan Drug Congress brings …

Category: Health Go Health

RAREsummit21 Tim Ringrose

WEBBio: A nephrologist and intensive care specialist, Tim has over 20 years’ experience of driving innovation in healthcare through the harnessing of health technology. He helped …

Category: Health Go Health

RAREsummit21 Kath Bainbridge

WEBDr Kath Bainbridge. Head of Genomic Science and Emerging Technologies, Department for Health and Social Care. Bio: Kath’s remit includes genomics science policy, sustainable …

Category: Health Go Health

RARESummit 2019 – Patients as partners

WEBKeynote Speaker. Alastair Kent, OBE presented ‘From the margins to the centre: A personal reflection on progress for rare disease patients and families’, walking us …

Category: Health Go Health

Speaker Jenny Dickens

WEBDr. Jenny Dickens is a clinician scientist and respiratory consultant at Addenbrooke’s and Royal Papworth hospitals, as well as a busy mum to two young children. She qualified in …

Category: Health Go Health