Als-mnd.org

Support for Family & Caregivers

Children and young people affected by an MND diagnosis can find information and support through this MNDA resource. This resource explains why a child or young person may need … See more

Actived: 4 days ago

URL: https://www.als-mnd.org/support-for-pals-cals/clinical-care/support-for-family-and-caregivers/

Nutrition and Swallowing

WEBThis healthcare team can support some common issues that occur with nutrition and swallowing for people with ALS/MND. Common problems include weight loss, poor …

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Breaking the News in ALS/MND

WEBA primer for Physicians and Allied Health Professionals. Learning objectives: Describe the impact delivering news in ALS/MND can have on patients, caregivers and healthcare …

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What is motor neurone disease

WEBWhat is motor neurone disease? People who receive a diagnosis of any serious illness, and those close to them, are very likely to have feelings of shock, anger and despair. This is …

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Genetic Counselling & Testing

WEBMoreover, a consultation with a genetic counsellor does not mean that a genetic test will be conducted. Instead, individuals use these consultations to decide if genetic testing is …

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Mental Health Support

WEBMental health support throughout the progression of the disease can help a person cope with emotions that can be difficult to manage. Multiple healthcare professionals are …

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International Alliance of ALS/MND Associations

WEBThe Alliance is a global network of ALS/MND associations informed by PALS/CALS, that builds capability for its members and connects to external stakeholders. We help …

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Allied Professionals Forum

WEBThe Allied Professionals Forum (APF) brings together healthcare professionals from around the world, including physiotherapists, respiratory therapists, nutritionists, speech …

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Events for April 2024

WEBJoin us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and …

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Alliance Webinars

WEBMay 29, 2024 – 7:00 AM Eastern Time (US and Canada) This webinar covers the essentials to understand respiratory support in ALS/MND. We look at how breathing is affected, …

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Occupational Therapy and Activities of Daily Living

WEBOccupational therapists can support people with mobility, household tasks, self-care activities, home modification, work and occupations, socializing, communication, and …

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Events for May 2024

WEBThe 2022 Allied Professionals Forum will be held on November 30, December 1 & December 2, 2022 in a hybrid format – both virtually and in San Diego, …

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Events from May 30 – April 24

WEBThis webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be …

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Allied Health Professionals Agenda ALS/MND Connect The …

WEB*All times are shown in Pacific Standard Time (PST) **Times subject to change help ensure it meets the needs of people with MND/ALS? 12:40 – 2:00 PM Poster Luncheon & …

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Ice Bucket Challenge

WEBThe Ice Bucket Challenge led to new treatments being approved, new genes being discovered, new assistive technology being developed, and new global research …

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Taiwan Motor Neuron Disease Association

WEBTaiwan Date founded: Oct 1996 Region covered: Taiwan. Address: Headquarters, Taipei: 7F-1, No. 2 Minzu E. Rd., Zhongshan District, Taipei 10461, Taiwan Tel: +886 2

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