Aamac.ca

Disease Info Aplastic Anemia & Myelodysplasia Association of

WEBPNH affects 1-1.5 persons per million of the population and is primarily a disease of younger adults. The median age of diagnosis is 35-40 years of age, with occasional …

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URL: https://aamac.ca/disease-info/

About Us Aplastic Anemia & Myelodysplasia Association of …

WEBToday, the Aplastic Anemia and Myelodysplasia Association of Canada is a federally incorporated and a registered national charity with the ambitious goal of providing a …

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Global PNH Patient Registry Aplastic Anemia & Myelodysplasia

WEBGlobal PNH Patient Registry. The Aplastic Anemia and MDS International Foundation (AAMDSIF) and the National Organization for Rare Disorders (NORD ®) have launched …

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Transfusions and MDS Let’s Talk About the Burden of Blood

WEBGwen was diagnosed with MDS in 2007 at age 65 when a routine blood test showed her hemoglobin was below normal (for women, normal is 120-160 g/L).

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HOW TO INTERPRET YOUR BLOODWORK

WEBDefinition. Myelodysplastic syndromes (MDS) form a group of clonal hematopoietic stem cell malignancies characterized by ineffective hematopoiesis in one or more cell …

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Resources Aplastic Anemia & Myelodysplasia Association of …

WEBParoxysmal Nocturnal Hemoglobinuria & Aplastic Anemia – Monika Oliver BSc MD FRCPC. 27-04-2023 - 09:04. Click here for a recording of the presentation …

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Living with MDS -Managing the Disease, Treatment & Side …

WEB90% of people will suffer from fatigue – tiredness, feeling less alert, trouble concentrating or with memory, weakness and lack of motivation. On a scale of 1(no fatigue)-10(extreme …

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Aplastic Anemia & Myelodysplasia Association of Canada

WEBThe Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) is a leading funder of research into bone marrow failure diseases in Canada. Our volunteer-run organization …

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New! Pilot program: One Mile at a Time Transportation Program

WEBNew! Pilot program: One Mile at a Time Transportation Program for Canadians with a blood cancer. During these uncertain times, The Leukemia & Lymphoma Society of Canada …

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SADIE News Aplastic Anemia & Myelodysplasia Association of …

WEBSADIE News. Message from the Ontario Ministry of Health. As you know, many patients with Aplastic Anemia and Myelodysplasia who are eligible for Ontario Drug Program …

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AAMAC’s new logo

WEBAAMAC is proud to launch our new logo as part of the ongoing evolution of our brand. Our profile has grown and evolved over the last 31 years. We have altered our logo to reflect …

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Western Canada Patient Support Group Aplastic Anemia

WEBPatient Support. AAMAC funds research into bone marrow failure diseases such as aplastic anemia, PNH and MDS. The following are current examples of work we at AAMAC are …

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COVID-19 Information Aplastic Anemia & Myelodysplasia

WEBCanada pauses the use of the AstraZeneca vaccine Update – March 29 2021. New research has emerged from the Paul-Ehrlich-Institut in Germany reporting adverse …

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INQOVI Aplastic Anemia & Myelodysplasia Association of Canada

WEBPatient Support. AAMAC funds research into bone marrow failure diseases such as aplastic anemia, PNH and MDS. The following are current examples of work we at AAMAC are …

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Marrow Failure & Myelodysplasia (MFM) Patient and Family …

WEBPatient Support. AAMAC funds research into bone marrow failure diseases such as aplastic anemia, PNH and MDS. The following are current examples of work we at AAMAC are …

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An Orphan Drug Framework for Canadians

WEB5 What do we mean by “Framework”? The proposed Orphan Drug Framework will encompass: Regulatory Amendments: To the Food and Drug Regulations in the form of …

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Video interview: Loretta Garbutt, Jessica Spring and Cindy Anthony

WEBPatient Support. AAMAC funds research into bone marrow failure diseases such as aplastic anemia, PNH and MDS. The following are current examples of work we at AAMAC are …

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Vancouver Patient Education Meeting – IN-PERSON

WEBVancouver Patient Education Meeting – IN-PERSON. SAVE THE DATE. Date: Saturday, May 4, 2024 Time: 8:30AM – 1PM Venue: Holiday Inn Express Vancouver-Metrotown …

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Drug Approval Process in Canada: An Overview

WEBQuebec (INESSS) – Institute National d’Excellence en Sante et en Services Sociaux. • In Quebec, manufacturers submit branded drugs, generics, and biosimilars to INESSS for …

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