Rarediseases.org

List of Rare Diseases A-Z Database NORD

WEBA rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 10,000 rare diseases affecting more than 30 million …

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URL: https://rarediseases.org/rare-diseases/

Living with a Rare Disease NORD

WEBLiving with a Rare Disease | NORD. Home /. It’s truly hard to have a rare cancer and have financial hardship in the time of the pandemic, but assistance like what your foundation …

Category: Cancer Go Health

Centers of Excellence Archive

WEBNORD Rare Disease Centers of Excellence are working together to make this vision a reality. Each Center offers world-class doctors in all major specialties and brings …

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Protecting Patients in State-Regulated Insurance

WEBProtecting Patients in State-Regulated Insurance. NORD supports the Affordable Care Act (ACA) and its requirements that health insurers offer comprehensive plans with strong …

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Financial Assistance For Patients With Rare Diseases NORD

WEBThe Rare Disease Educational Support Program reimburses registration costs for rare disease-specific educational offerings such as workshops, nutrition classes, and …

Category: Nutrition Go Health

Radiation Sickness

WEBHematopoietic sickness (bone marrow sickness)is the type of ARS occurs at exposure of between 200 to 1000 rads. Initially it is characterized by lack of appetite …

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NORD Releases Report on the State of Rare Disease …

WEBWashington, DC—November 19, 2020: Today, the National Organization for Rare Disorders (NORD®) published a comprehensive report through its RareInsights ™ initiative: …

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Mixed Connective Tissue Disease

WEBDisease Overview. Mixed connective tissue disease (MTCD) is an uncommon systemic inflammatory rheumatic condition. MCTD is a specific subset of the …

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BARRIERS TO RARE DISEASE DIAGNOSIS, CARE AND …

WEB4 rarediseases.org rarediseases.org5 main symptoms of their rare disease were also common in other conditions, adding complexity to the pathway to accurate diagnosis; …

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Common Variable Immune Deficiency

WEBCommon variable immune deficiency (CVID) is a type of primary immunodeficiency, which is defined as an immune system dysfunction typically caused …

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NIH/Osteoporosis and Related Bone Diseases National Resource …

WEBThe NIH/Osteoporosis and Related Bone Diseases National Resource Center (ORBDNRC) provides patients, health professionals, and the public with an important link to …

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Thrombotic Thrombocytopenic Purpura

WEBIt is the most common form of childhood vascular inflammation (vasculitis) and results in inflammatory changes in the small blood vessels. The symptoms of HSP …

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Mayer-Rokitansky-Küster-Hauser Syndrome

WEBDisease Overview. Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome is a rare disorder that affects women. It is characterized by the failure of the uterus and the …

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Brugada Syndrome

WEBPrevious section; Next section > Causes. Brugada Syndrome is caused mainly by mutations in the SCN5A gene which encodes the α-subunit of the voltage …

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April 4, 2019 LOB 923 Albany, NY 12248

WEBOn behalf of the 1-in-10 individuals in New York with one of the approximately 7,000 known rare diseases, the National Organization for Rare Disorders (NORD) urges you to …

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Glucose-6-Phosphate Dehydrogenase Deficiency

WEBYellowing of the eyes, mucous membranes and skin (jaundice) is common. Gastrointestinal symptoms such as diarrhea, nausea or abdominal discomfort or pain …

Category: Health Go Health