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The Myeloma Crowd

Details: The Myeloma Crowd Research Initiative (MCRI) is a new approach to funding cancer research; combining the skill and knowledge of leading myeloma specialists with the patient perspective and supportive patient social communities to select and fund promising research projects in multiple myeloma world wide.

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Mental health & multiple myeloma

Details: Mental health is often not discussed openly due to negative stereotypes. Some struggle with mental health at an early age. Others may experience mental and emotional health and wellness their entire lives..…until they experience a traumatic health event such as a cancer diagnosis.

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› Url: https://www.myelomacrowd.org/mental-health-myeloma-let-s-talk-about-it/ Go Now

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The Health Benefits of Reiki

Details: About the Author. Linnley Sweeney - Linnley joined the Myeloma Crowd in January 2020 to share her passion for health. Her husband is a Childhood Cancer Survivor as well as a Cancer Biologist. Finding a cure, better treatments, and balancing …

› Verified 8 days ago

› Url: https://www.myelomacrowd.org/the-health-benefits-of-reiki/ Go Now

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Better Breath, Better Health

Details: Courtney says "It is the most efficient way to breathe, as it pulls down on the lungs, creating negative pressure in the chest, resulting in air flowing into your lungs.”. Singers use this type of breathing and over time with practice, this method of breathing increases lung capacity. 3. Breathe 5 Seconds in and 5 Seconds Out.

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Your Skin and Multiple Myeloma

Details: Prevention is Key: Skin Care is Skin Health. Skin cancer prevention is a top public health priority for the American Academy of Dermatology Association. One of the major risk factors for skin cancer is unprotected exposure to the sun’s UV rays. Therefore, prevention starts by …

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Living Well With Cancer

Details: Following these nine steps has made a dramatic impact on my physical and mental health. 1) Get the best medical care possible (get a second or third opinion if necessary). You owe it to yourself, your family, and your friends to get the best care possible!

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› Url: https://www.myelomacrowd.org/living-well-with-cancer/ Go Now

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Eat Your Mushrooms! Powerful Health Benefits For The

Details: The health benefits of consuming mushrooms include: Weight maintenance or loss when consumed in place of high fat meats. Positive changes in the microbiota. Glucose regulation. Anti-inflammatory effects. Risk reduction for obesity, metabolic syndrome, colitis and cancer. The components of mushrooms that are bioactive (have biological activity

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› Url: https://www.myelomacrowd.org/eat-your-mushrooms-powerful-health-benefits-for-the-cancer-thriver/ Go Now

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New Jersey: Hackensack Meridian Health's New Myeloma

Details: The team at Hackensack Meridian Health, part of New Jersey’s largest and most comprehensive healthcare network, recently announced the opening of the Institute for Multiple Myeloma. The Institute will be located in a state-of-the art research facility at the Hackensack Meridian Health Interprofessional Health Sciences Campus in Nutley and

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Is Cleaning Good For Your Health

Details: About the Author. Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation.

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Exercise and Mental Health

Details: About the Author. Linnley Sweeney - Linnley joined the Myeloma Crowd in January 2020 to share her passion for health. Her husband is a Childhood Cancer Survivor as well as a Cancer Biologist. Finding a cure, better treatments, and balancing …

› Verified 6 days ago

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Is There one Sugar That is Better (or less bad) Than

Details: The impact of this difference will depend on: the amount and frequency of sugar consumed, the composition of the rest of the diet, other health habits and any predispositions to cancer. What Should You Do? As I outlined in my previous blogs on the subject, the strictest added sugar recommendations are 25 g per day for women and 38 g per day for

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› Url: https://www.myelomacrowd.org/sugar_and_cancer/ Go Now

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An Update On Tom Brokaw's Myeloma Journey

Details: Tom Brokaw is multiple myeloma's most famous survivor. On September 11, he guest hosted on the Today show and shared his health update with viewers. The following day, the Washington Post and several other news sources ran a follow-up story. I celebrate Tom's good news, as I do positive milestones reached by all those battling myeloma.

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medicare and oncology care

Details: It is intended to improve our nation’s health by providing clear measurable goals and a timeline to move Medicare and the US healthcare system toward paying providers on the quality of care rather than the quantity of care that they give their patients.

› Verified 7 days ago

› Url: https://www.myelomacrowd.org/understanding-the-oncology-care-model/ Go Now

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importance of planning for healthcare costs

Details: Many said they were forced into retirement because of health issues (65%), job loss (22%), or because they had family caregiving responsibilities. It is worth noting that the pandemic left many older and ill persons very concerned about their health, especially in the workforce. As a result, many are going into debt with excessive credit card

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Medicare and myeloma

Details: Medicare is a government health insurance program. To be eligible you must be 65 years old, have collected SSDI Insurance for more than 24 months, or have been diagnosed with end-stage kidney disease or ALS. Medicare Parts: Part A: Hospital care, skilled nursing facilities, nursing homes, hospice, and home health.

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A Look at Physical Activity vs. Exercise

Details: About the Author. Linnley Sweeney - Linnley joined the Myeloma Crowd in January 2020 to share her passion for health. Her husband is a Childhood Cancer Survivor as well as a Cancer Biologist. Finding a cure, better treatments, and balancing …

› Verified 9 days ago

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The Lack of Sleep and Effects on Cancer

Details: Excerpt taken from Why We Sleep by Matthew WalkerThis is a completely fascinating book on the effects of sleep and health.We highly recommend this book to myeloma patients and caregivers alike. I was once fond of saying, "Sleep is the third pillar of good health

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Accelerating Multiple Myeloma Research with FREE

Details: Eleanor - I think you have achieved a truly remarkable feat in setting up Myeloma Crowd and Health Tree. I registered my husband's details (with his consent!) on health Tree this evening but hit a problem in trying to enter his weight. His weight has been stable at about 10 stones =63.50 Kg for years but the site told me his weight had to be a number over 75 but I don't think it specified the

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Protecting Our Mental Health

Details: About the Author. Linnley Sweeney - Linnley joined the Myeloma Crowd in January 2020 to share her passion for health. Her husband is a Childhood Cancer Survivor as well as a Cancer Biologist. Finding a cure, better treatments, and balancing life through treatment is a huge passion of their family.

› Verified 8 days ago

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National Institutes Of Health

Details: National Institutes Of Health. James N. Kochenderfer, MD. Position Investigator at NIH Research Focus CAR T cell therapy for multiple myeloma. Dr. Kochenderfer was the first to develop anti-BCMA CAR T cells, and his work focuses totally on developing new CAR T …

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About The Myeloma Crowd

Details: About the Myeloma Crowd. The MYELOMA CROWD is a division of The CrowdCare Foundation, a patient-driven, 501(c)3 non-profit organization that empowers patients with rare diseases at each step of their disease journey – from diagnosis, through education, care and on to a cure.

› Verified 5 days ago

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How to build your myeloma healthcare team

Details: You need experts in myeloma, mental health, finances, and other aspects of navigating your care. HealthTree University is here to help! Watch patient experts and health professionals explain all they’ve learned about assembling your myeloma team. Below are some video excerpts from our HealthTree University curriculum to help you learn more

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What is HealthTree® for Multiple Myeloma

Details: What is HealthTree? HealthTree is a free, new tool created by myeloma patients for myeloma patients. HealthTree is an online tool myeloma patients can use to navigate their care while also helping advance a cure. HealthTree empowers patients with myeloma knowledge, connects them to peers in similar situations and identifies personalized

› Verified 9 days ago

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new rules for medical cost disclosure & surprise billing

Details: The healthcare price disclosure rule went into effect this month. The rule mandates that hospitals disclose their privately negotiated charges with commercial health insurers and are required to publicly post their prices for three hundred of the most common services that can be scheduled in advance, such as elective procedures.

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Why You Can't Out-Exercise a Bad Diet

Details: Physical activity can reduce health risks associated with diseases like cardiovascular disease, type 2 diabetes, dementia and some cancers by 30%, but it doesn't actually help us lose weight. Although obesity is increasing globally, physical activity (at least in …

› Verified 7 days ago

› Url: https://www.myelomacrowd.org/why-you-can-t-out-exercise-a-bad-diet/ Go Now

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Your Gut Bacteria and Responses to Multiple Myeloma

Details: About the Author. Jennifer Ahlstrom - Jenny A - Myeloma survivor, patient advocate, wife, mom of 6. Believer that patients can help accelerate a cure by weighing in and participating in clinical trials. Founder of Myeloma Crowd, Myeloma Crowd Radio, HealthTree and the CrowdCare Foundation.

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Basic Genetics and Cancer Biology

Details: HealthTree University: Basic Genetics and Cancer Biology (Part 2 of 3) Cancer develops when something goes wrong in your cells - these are called mutations. In this HealthTree University series on genetics and cancer biology we take a look at the different types of mutations that happen to trigger cancer growth.

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› Url: https://www.myelomacrowd.org/healthtree-university-basic-genetics-and-cancer-biology-part-2-of-3-/ Go Now

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Meet The Man Who Changed Cancer Forever

Details: Immunotherapies have made their mark in myeloma as effective and noninvasive treatments that have been saving lives and placing patients in deep remissions. Come learn from the man, Jim Allison, who's bright thinking and out-of-the-box ideas got us to where we are now in the immunotherapy world. Ask him your questions! Register now.

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finances and myeloma

Details: Current Financial Health Illness. It seems that we are being deluged daily with environmental, public health, economic and political issues that continuously challenge our ability to sit silently in our financial house. Staying on top of everything and keeping ahead of the rising cost of food and other staples can be exhausting.

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› Url: https://www.myelomacrowd.org/financial-fitness-steps-to-get-in-good-financial-shape/ Go Now

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HealthTree University: Financial Advice for Myeloma

Details: HealthTree University: Financial Advice for Myeloma Patients and Their Families (3/3) Cancer doesn't just affect the body, but your and your family's peace and financial security. We teamed up with Myeloma Financial Coach Diahanna Vallentine to bring you a series of videos to help you make the best decisions when it comes to your finances.

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Get Moving for Blood Cancer Awareness

Details: About the Author. Linnley Sweeney - Linnley joined the Myeloma Crowd in January 2020 to share her passion for health. Her husband is a Childhood Cancer Survivor as well as a Cancer Biologist. Finding a cure, better treatments, and balancing …

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Exercise Can Relieve Stress

Details: Some health clubs and hospitals offer exercise classes address the challenges and needs of people with your specific cancer) Do gardening or house cleaning – both provide physical workouts Most importantly, listen to your body; don’t exercise if you’re not feeling well or running a fever

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Colin Powell Death Highlights COVID-19 Dangers for Cancer

Details: Health experts are criticizing some stories and social media comments made after retired General Colin Powell’s death from COVID-19, despite the fact he was fully vaccinated. The experts note that Powell had multiple myeloma, a rare blood cancer that can inhibit the ability of COVID-19 vaccines to produce antibodies to fight the disease.

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› Url: https://www.myelomacrowd.org/colin-powell-death-highlights-vaccine-needs-for-cancer-patients/ Go Now

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Tom Brokaw Cancer Treatment for Multiple Myeloma & Book

Details: Soon after this misdiagnosis, he was lucky enough to go to the Mayo Clinic for his annual checkup, and a low white blood cell count, along with bone pain, raised a red flag to people at one of the premier health facilities in the world.

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› Url: https://www.myelomacrowd.org/dateline-nbc-multiple-myeloma-tom-brokaws-life-interrupted/ Go Now

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Racial Disparities in Multiple Myeloma

Details: Disparities are typically related to certain racial/ethnic groups, socioeconomic status, and living in a geographically-isolated area. There are also risk factors associated with cancer disparities. These risks include access to treatment and health care, genetics, socioeconomic factors, exposures to harmful chemicals and environmental toxins

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UC San Diego Health

Details: Home / Doctor Directory / UC San Diego Health. UC San Diego Health. Edward (Ted) Ball, MD. Position Dr. Edward is chief of the UC San Diego Bone Marrow Transplant Division, and a …

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Today is World Cancer Day: Why Multiple Myeloma Patients

Details: The Cancer Grows Old program will focus on four primary challenges that have been identified in our research and stakeholder discussions: The Patient Journey, Clinical Research & Evidence, Public Health Policy, and Patient-Centric Education. the goal is to give people living with cancer – in the United States and around the world – the best

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Myeloma Tasty Tuesday

Details: Your gut health (which makes up 95% of your microbiome) is essential to your overall health. To put things into perspective, we are more microbiome than human cells. We each have around 30 trillion human cells within our body, compared to the …

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Medicare Coverage

Details: A patient’s health care provider is in the best position to determine when and whether a patient will benefit from CAR T cell therapy and should not be limited by a narrow coverage policy.” Medicare would pay for the CAR T therapy for relapsed or refractory patients, but not to be used for earlier lines of therapy.

› Verified 7 days ago

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The Emotional Aspects of a Stem Cell Transplant

Details: Emotions play a major role in your overall health and wellbeing, and this is especially true when undergoing the Stem Cell Transplant. One of the reasons it's so important to deal with your emotions in a positive way, according to psychological research , is that a Stem Cell Transplant is considered to be a "Significant Emotional Stressor".

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Cancer Distress Coach Mobile App

Details: The app is currently being supported by the Duke Cancer Institute, Duke Institute for Health Innovation, Duke Health, and the Duke University School of Nursing. ABOUT THE APP The app is a study from the Duke University, with the goal to determine the effectiveness of stress-reduction tools when delivered via a mobile app .

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HealthTree Webinar: Track My Myeloma

Details: HealthTree is a new tool created by myeloma patients, for multiple myeloma patients to help them throughout their lifetime with the disease. One of the key struggles for each of us as patients is trying to keep a handle on our lab values and what they mean.

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› Url: https://www.myelomacrowd.org/healthtree-webinar-track-my-myeloma/ Go Now

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Blood Cancer Awareness Month Building Muscles for Myeloma

Details: You can walk, bike, run, hike, garden, yoga, swim, lift weights, or garden your way to better health. Any level of activity counts and we are just tracking minutes of activity and not steps. Step 2- Create a new account (even if you’ve participated in the past) Step 3- Once logged in join the challenge and use code “muscles” to join our

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MD Anderson Cancer Center

Details: Gregory Kaufman, MD. Position. Assistant Professor, Department of Lymphoma/Myeloma, Division of Cancer Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX. Research Focus. Developing novel therapies and improving patient outcomes in multiple myeloma Read More. ADVERTISEMENT.

› Verified 4 days ago

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COVID-19 Isolation Precautions for Immunocompromised

Details: My career in the pharmaceutical industry has given me insights that I am currently putting to use as an advocate to lower drug pricing, especially prices for anti-cancer drugs and, very specifically, CAR-T therapies, with recent contributions posted by Health affairs, the Institute for Clinical and Economic Review and the Centers for Medicare

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Aspirin Could Cut Risk of Death for Cancers by 20%

Details: Dana Farber researchers (Catherine Marinac, PhD and colleagues) led a study of 567 myeloma patients who were diagnosed with myeloma between 1980 and 2021 in the Health Professionals Follow-up Study (HPFS) and the Nurses' Health Study (NHS). Participants in both groups took aspirin for two years on follow-up questionnaires beginning in 1986 in

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Turmeric: A Delicious Spice With Powerful Anti-Cancer

Details: Turmeric is a spice made from grinding the roots of the Curcuma longa plant, also called curcumin. It is a prime ingredient in curry powder, which is common in Indian and Asian cuisine. The active ingredient in tumeric is curcumin and can be taken in powder or pill form. You can spot turmeric by its distinctively rich, vibrant yellow color.

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